Media & Events

Carer submission by  Evelyn Scott OAM, Kylie’s mother and carer.

Submission no. 94

Click here to know more

‘France:  Take Me to the River – Cruising along the Seine from Paris to Normandy is the perfect way to travel’ article.

Kylie with her mother Evelyn enjoyed this wonderful cruise following Kylie’s Art Retreat in France. 

In the final paragraph the journalist noted ‘It’s time to be sad as I have to say goodbye to the ship and my lovely fellow passengers.  There are the Terrells, the gorgeous Kylie Scott and her mother Evelyn from Sydney.

Kylie’s Sunflowers art work

Research led by Dr Samuel Arnold, Lecturer, Western Sydney University, and Visiting Research Fellow, UNSW Department of Developmental Disability Neuropsychiatry.

Kylie was fortunate to be part of The Valued Contributions Project as one of 11 people with intellectual disability who met to ‘contribute’, finishing with an evening at UNSW to speak to their ‘Contributions’. 

* The conceptualising of ‘contribution’.

Often the many contributions that people with disability make are overlooked or undervalued, by themselves and by others.  We believe that if these contributions can be identified and measured, that their significance will become more apparent, elevated, and valued in society.  Also that people will be better supported by their networks and the NDIS in their aspirations and efforts to make and sustain such contributions.


*Kylie speaks at 21.40 and 32.00

Kylie's Speeches

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Kylie’s Advocacy

2 May 2024
Kylie recorded a talk for Project GROW on intellectual disability health training.

Presentation (on Zoom) for the CESPHN (Central and Eastern Sydney Primary Health Network) GROW program delivered nationally to GPs from My Health.

23 March 2024
The South West Sydney Disability Expo

Kylie spoke at The South West Sydney Disability Expo

August 2023
The Sydney Disability Expo
Disability expo Kylie Scott

Kylie spoke at the Sydney Disability Expo

July 2023
Voice to Parliament campaign
20 July 2023
Sydney Local Health District (SLHD)

Sydney Local Health District (SLHD) - Innovation and Research Symposium, 20 July 2023

Keynote Speaker: Kylie presented the talk she gave at the UN, NY.

10 February 2023
Kylie spoke at the VALID Having a Say Conference at Deakin University, Geelong, Victoria

The aim of the Having a Say Conference is to empower people with disability to:

Have a say about issues that affect their lives

Celebrate ability and achievement

Help plan and run a national conference

Be heard by politicians, government and service providers

Meet people from around Australia and the rest of the world

Be supported to share ideas and talk about issues and recommendations made at the conference

25 November 2022
Valued Contributions

‘Valued Contributions’ presentation to PANDDA conference, Parramatta, NSW

16 June 2022
Contributions Project 2022

Contributions Project 2022 (with Mum and nephews) - 16 June 2022

June 2022
CRPD (UN Convention on the Rights of Persons with Disability)


May 2022
NSW CID (Council for Intellectual Disability)
June 2021
Rotary Club of Concord
June 2021
DSAN member Kylie Scott was recently appointed as a self-advocate consultant with Inclusion International

In June 2021, Kylie and other self-advocates met from around the world, organised by Inclusion International over Zoom to discuss deinstitutionalisation. You can read Inclusion International’s Global Self-Advocate Report 2021, ‘Closing Institutions and Living in the Community’.

23 August 2017
Non-invasive pregnancy tests (NIPT)

NB: Kylie has attended, and spoken at, World Down Syndrome Congresses in Sydney (2000), Singapore (2004), Glasgow (2018), Dubai (online 2021), and will speak at the Brisbane Congress (July 2024)

2003 & 2007
Kylie Scott played tennis with Special Olympics Australia

In 2003 (Dublin) and 2007 (Shanghai) Kylie played tennis with Special Olympics Australia, and spoke to service organisations (ie. Rotary) to raise funds for the ACT team to participate.

Kylie's Highlights

23 MARCH 2024
South West Sydney Disability Expo

Presenting at the South West Sydney Disability Expo at Liverpool 

‘My Amazing Life’

20 MARCH 2024
World Down Syndrome Day

The Minister for Families and Communities, and Minister for Disability Inclusion the Hon Kate Washington hosted an afternoon tea in the Jubilee Room of NSW Parliament House exclusively for Down Syndrome NSW members and their families.

This was a significant opportunity for members to be included and to celebrate World Down Syndrome Day.

21 MARCH 2024
Guardianship Division NCAT
International Day for Women and World Down Syndrome Day

At the Guardianship Division, NCAT, staff presentation celebrating the International Day for Women and World Down Syndrome Day.

20 MARCH 2024
World Down Syndrome Day

A delightful and truly special evening at NSW Government House, hosted by DS NSW Patron, NSW Governor, Her Excellency the Honourable Margaret Beazley AC KC and Mr Denis Wilson to celebrate World Down Syndrome Day.

21 March 2023
World Down Syndrome Day at the United Nations in New York

Kylie talked about the UN Convention on the Rights of Persons with Disability (the CRPD), legal rights, decision making and easy to understand communication.

Tuesday 21 March 2023 was World Down Syndrome Day, which is a day to celebrate people in our communities who have Down Syndrome.

The Rotary Club of Concord, Wentworth Point Probus, SLHD, Hireup and crowd funding generously supported Kylie so she could join other self-advocates from around the world to celebrate World Down Syndrome Day at the United Nations in New York.

May 2022
Kylie spoke on how to vote with the rights of people with disabilities in mind.

Kylie spoke on how to vote with the rights of people with disabilities in mind. Hear what Kylie has to say about defending the NDIS.

21 March 2022
World Down Syndrome Day at Inclusion Foundation

For World Down Syndrome Day (21 March 2022), Kylie was flown to Melbourne to be on a panel at Inclusion Foundation’s Chairman’s Lunch, at the MCG with Dylan Alcott AM (2022 Australian of the Year); Cate Sayers (Founder and Director of Inclusion Foundation), and Brian Cook (CEO, Carlton Football Club). The panel discussion addressed ‘How do leaders champion inclusion?’

March 2022
World Down Syndrome Day

Kylie attended a World Down Syndrome Day afternoon tea at Parliament House NSW. The tea was hosted by the NSW Minister for Families and Communities and Minister for Disability Services, the Hon. Natasha Mclaren-Jones.

Following other speakers, the Sydney Swans AFL CEO Tom Harley confirmed the new 3-year partnership with the Down Syndrome Association of NSW. Kylie is pictured with Tom here.

December 2021
The Drum

In December 2021, Kylie was a guest speaker on The Drum. This came after her involvement in the Limb Family Foundation’s report, ‘Reaching Potential – Experiences of Young People with Significant Intellectual Disability.’ Statistics from this report were quoted on The Drum. Kylie spoke with host Ellen Fanning about her experiences, and her passion to speak up for others living with intellectual disability. The report can be read here.

June 2021
Kylie Scott awarded an Aspire Award Medal

In January 2021, Kylie was featured in the Concord Rotary Channel editorial.

(Tap on the link below to read about Kylie on pages 5-6.)
Read here -> Concord-Channel

19 July 2019
My Presentation
Improving engagement with people with intellectual disability: Kylie Scott

See Kylie’s presentation, ‘Improving Engagement with People with Intellectual Disability.’ This speech was screened and made an exhibit of the Royal Commission into into Violence, Abuse, Neglect and Exploitation of People with Disability (EXHIBIT 4-1.01 – NSW.9999.0002.0001)

- See my full video here

World Down Syndrome Day - NY

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