Kylie, photo by Down Syndrome Australia

Kylie Scott – Professional Speaker | Advocate | Artist

“I have a dream that people with disability will one day live in a nation where they will not be judged by their disability, but by their ability”

Kylie Scott

Kylie is a professional public speaker who shares the experiences of people living with Down syndrome. Over the years, she has represented people with intellectual disabilities on various councils and committees. Currently, she is the NSW Representative on the Down Syndrome Australia (DSA) Down Syndrome Advisory Network (DSAN).

See Kylie’s presentation, ‘Improving Engagement with People with Intellectual Disability’, which was screened and made an exhibit of the Royal Commission into into Violence, Abuse, Neglect and Exploitation of People with Disability (EXHIBIT 4-1.01 – NSW.9999.0002.0001):

Recently, Kylie has participated as a self-advocate in consultations organised by Inclusion International. In June, Kylie met on Zoom with fellow self-advocates from Australia and New Zealand to discuss de-institutionalisation and how to make it happen. De-institutionalisation is reversing the past isolation of people with disabilities in institutions, and giving them choice over where and how they live.

Earlier this year, Kylie was featured in the Concord Rotary Channel editorial.

(Tap on the link below to read about Kylie on pages 5-6.)

Page of Concord Channel featuring Kylie


Kylie has presented at conferences, seminars and workshops for the Sydney Local Health District, Rotary and other service organisations. Her presentations, tailored to each audience, cover topics such as:

My journey with disability

Kylie knows what it is like to sometimes be a square peg in a round hole! Her biographical speech gives insight into the ups and downs of living with Down syndrome, and how we can better engage with people living with intellectual disability. Watch excerpt:

What is Down Syndrome?

Kylie wants more people to know about living with Down syndrome, so that everyone can become more aware of and understand people with Down syndrome as individuals with their own hopes and dreams.

A step by step guide to understand and help us

Many people living with intellectual disability want their voices to be heard. Listen to Kylie to find out how you can help empower people like her in your community to live their lives to the fullest. Watch excerpt:

Non-invasive pregnancy tests (NIPT)

Did you know that 90% of pregnancies diagnosed with Down syndrome are now terminated? Today, parents are still not necessarily given a referral to a counsellor or other services to learn what to expect if their baby is diagnosed with Down syndrome.

Hear what Kylie has to say about the NIPT, from her perspective as a person with Down syndrome. Watch excerpt:

National Disability Insurance Scheme (NDIS)

Hear how the NDIS is helping Kylie and people with Down syndrome (an intellectual disability) with the right support to live full and independent lives. Watch excerpt:

These talks are suitable for conferences, corporate training, employment agencies, community and volunteering bodies, youth and service clubs and public sector workplaces.


Dr Ellen Skladzien, CEO of Down Syndrome Australia

“It was a privilege to have the opportunity to co-present with Kylie on the Down Syndrome Advisory Network. This presentation was part of a series of presentations for international Down syndrome organisations. It was an opportunity for other organisations to learn about the work we are doing on self-advocacy. We had some great feedback about the presentation, and Kylie’s involvement was integral to its success.”

Teresa Anderson – Chief Executive, Sydney Local Health District

“Kylie is an inspirational public speaker. Kylie is passionate about voicing the rights of people with disabilities, and is able to do so in an articulate, humorous and relatable way that really resonated with the staffing the Sydney Local Health District."

Louise Farrell – Director of Priority Programs Unit, Ministry of Health

“Thank you for coming to our event to celebrate the International Day of People with Disability [at the Ministry of Health]. Your talk was great and showed us the hard things you have faced with your managers and other workers. It helped us all to think about how we engage with people with disability and how we can make sure we have a more diverse workplace.”

Dr Jacqueline Small, President of Australian Association of Developmental Disability Medicine

“Kylie was part of the formal opening of our Australian Association of Developmental Disability Medicine 2018 conference. She spoke eloquently and passionately as a person with Down syndrome and ensured that people with disability were at the forefront of our conference."