You raise me up

Kylie’s life as a person with an intellectual disability (Down syndrome) is very full, and her experiences have equipped her to share her story for the benefit of others. For Kylie, it is important that the focus for everyone should be on ability – not disability.

When Kylie was growing up, her parents lobbied for her to have the same opportunities as her sister, such as going to her local school. With her mother Evelyn’s help, Kylie runs her own business as a public speaker, advocate and artist. Kylie has described her mother as the wind beneath her wings.

See Kylie’s CV attached below.

You raise me up to walk on stormy seas

Like everyone, Kylie has had ups and downs in her life. In particular, for many years before the NDIS, workplaces lacked the right understanding of the support needed for people with intellectual disability. Her talks highlight some readily understandable ways we all may assist people less able than ourselves so they are confident and included in all our communities.

‘Really, I want to speak up for people who can’t. We all need to be understood and supported.’

Kylie Scott
Kylie with then Governor-General Sir
Peter Cosgrove on World Down Syndrome Day
Kylie with then Governor-General Sir
Peter Cosgrove on World Down Syndrome Day

You raise me up to more than I can be

In 2017-2018, she attended the uni 2 beyond program, run by the Centre for Disability Studies, an affiliate of the University of Sydney’s Medical School. The program aims to help students become real advocates and supporters of social inclusion. There, she enjoyed a great sense of belonging as part of the university community, with Sydney Uni peer mentors helping her with her individual learning projects.

Awards & Achievements

One of the best times of Kylie’s life was representing Australia in tennis at the Dublin 2003 and Shanghai 2007 Special Olympics.

Kylie has represented people living with intellectual disability on various committees and networks. She was named as 2019 Sydney Local Health District’s Volunteer of the Year. In December 2020, Kylie received an Australian Aspire Award Medal of Recognition for Individual Best Achievement Service to the Australian People.

Kylie as 2019 Quality Award Winner for WSLHD
Kylie as 2019 Quality Award Winner for SLHD